The Portsmouth LINk Annual Report 2011-12 is now available to view or download.

The Annual report is a snapshot of LINk's work over the year and provides a summary of future plans and projects. The full report is submitted to the Secretary of State for Health every year in accordance with the set deadline (30th June 2012).

Portsmouth City Council have helped to collate the final report, with its content being agreed by the Chair of the LINk Transition Group and owned by the membership and LINk volunteers.

For further information on this process please got to the National LINk website

Paper copies of the report are available on request and a public copy is available from the Civic Offices Reception, Guildhall Square, Portsmouth.

What do you think of the new UK Clinical Trials Gateway (UKCTG)?

What do you think of the new UK Clinical Trials Gateway (UKCTG)? 

Please tell  us by completing this survey: https://www.surveymonkey.com/s/XK7NTBB 

Access to clear information about clinical trials is essential if we wish to see greater numbers of people take part in research in the future.

The UK Clinical Trials Gateway (UKCTG) http://www.ukctg.nihr.ac.uk/default.aspx was launched at the end of last year.  It's ambition is to provide accessible information to the public about clinical trials relevant to their condition, and which they may be able to participate in.

There is much scope to improve and strengthen the website and the information it provides, and we wish to do this based on the feedback you and others can provide. 

The survey also provides people with an opportunity to join a 'user panel.' This panel will be an important partner in the development of the site from a patient perspective. It will also be an important source of advice to me as NIHR National Director for Public Participation and Engagement in Research in thinking through how we can better meet the needs of people when it comes to digital health information about research.

From the NIHR National Director for Public Participation and Engagement in Research Chair, INVOLVE

Posted on behalf of Terry Carter, Chair of LINk Transition Group

Meetings Attended by the acting chairman in June

Solent NHS Patient Experience and Public Involvement Group

The Acting Chair attended this meeting on 28^th May at St James’ Hospital.

The following items were presented/discussed:-

Quality Account update

Legal guidance concerning complaints from trans-sexuals

Patient experience surveys – the format and contents of the survey forms

Key issues from Links and Hosps in the Ship Cluster

Membership update – re Foundation Trust status

Summary PPI Report

Patient information update

Quality Impact Assessments and Quality Schedules